CONNECTED HEALTH CONFERENCE • SAVE THE DATE • October 16-18, 2019 • Boston, MA
Individuals have increasing opportunity to access and aggregate their health data through health apps, patient portals, and research communities. Most of these services require individuals to enter into agreements which terms typically do not favor the individual or give the patient agency over the data. A model patient data use agreement with terms that empower individuals can provide people with the opportunity to manage and control their aggregated health data. This can also increase patient engagement and activation, improve self-management and outcomes, and improve the breadth and depth of data available for shared decision making, care management, and research.